In lieu of the "sick children" or "sick hubby" posts lately, I really wanted to post about the new toilet gel that we are using or the latest coolest cleaning supplies or the awesome family activites we should be doing...
WELL, THIS IS NOT THAT KIND OF BLOG period..lol!
After praying about it, and carefully reading my friends input, I decided to share how our sweet family is growing closer to our Heavenly Father through sharing our life experiences.
Disclaimer: If you are eating breakfast, lunch or dinner or any food for that matter quickly go the the right and find a blog to read under "Our Favorite Blogs"
If you are unable to withstand gross mommy humor refer to "Our Favorite Blogs"
If you are unable to withstand any gross things period...you know where to look
If you don't like whining or you like to read about happy fun extravagant adventures...yep you know..
This blog is about a womans (me) challenges and joys of having a spouse unable to work or play or attend church on a regular basis and about the things her very precious children are doing that keep her sane or insane. So if this is what you are interested in please stay and hopefully find some hope, a little strength and maybe some laughter as we take this journey together and yes maybe I will share a little about the cool toilet gel that keeps my bathrooms smelling clean and fresh.
~I will start with Jaliece's update...she is doing tons better! Yay I'm so happy we made it through another illness without an antibiotic sooo Awesome!! I LOVE blessings, I truelly believe that giving her a blessing made all the difference. She is so much fun, we laugh about the silliest things. A conversation we had this morning
Jaliece: singing -Merrily merrily merrily, life is a stream
me: life is but a dream
Jaliece: nose crinkled- butt's don't have dreams
me: first of all it's "bums" and it's "life is but a dream", meaning life is like a dream
Jaliece: ohhhh life is BUT a dream
me: smiling thinking hey close enough even if she likes putting emphasis on the word "but"
we have conversations similiar to this one all day long...it makes me so happy. She's such a card :) She mimics me doing the laundry and at times can be a very helpful shadow. I wish my children could be this age forever.
~Jeff was able to go to a baseball game with our nieghbors on Saturday. He has recently purchased an adult undergarment to help him deal with his inability to feel when he has to go to the bathroom at times. With the latest technology you can hardly tell he is wearing it. He hates the thought of it but likes the freedom and peace of mind it gives him to do activities longer then an hour or two. Jaliece has taken every advantage in teasing Jeff when she found him wearing it one morning, hey our sense of humors are intact! We still do not have a life plan on how to deal with the nerve damage and we have not been back to UCLA for any conclusive tests. We ran into an insurance snag, once that was resolved, we are now aggresively finding out what the hold up is...I still don't know if they have a plan for Jeff after that or what...so frustrating! I swear I am not praying for patience...lol You know when you pray for patience you get trials so that you can learn from that. He visits the V. A. ( veterans administration ) twice a week for counceling and medical appointments. They are looking into possible nuerological damage. I like that he is getting counceling and meds for his depression. I worry a ton about him. He sleeps like none other..well except my mom, now that I think about it. The last couple of years with her she would sleep so much anyway, Jeff sleeps most of the day and most of the night. I feel lonely and super worried about his mental status. I can't fix him only encourage healthy behavior, pray and support him as he goes through this. I deal with feelings of resentment on a daily basis. I keep a prayer in my heart and work with my Heavenly Father to be the best person I can be. Jeff is such an amazing person. I keep so much hope in my heart for him that some day my Jeffy will return. I am thankful that I have an eternal companion and that he is so great with our children.
~My little guy..Jarrin well you know the last couple of weeks he has struggled with a fever and cough. Thursday approx. 10p woke up crying and very upset with hallucinations. I took his vitals ( this was a great learning experience for me in that children's vitals are so different than adults and his vitals would indicate an unstable adult, after re-freshing my peds vitals) I found his were normal. However, his pupils were not reacting as they should. This was of great concern to me. Through the night he continued to have a couple more hallucinations with no fever. Friday was definately all about peds. For my certification, I attended a class at AMR about peds cases. When I got back, I took Jarrin into the urgent care. He vomitted in the waiting room which got him into a bed immediatley...yay! You know how long those waits can be. With the initial assesment the DR. and I found that Jarrin needed to be checked for appendicitis. Any time there is pain in the lower right quadrant, it must be ruled out. An I.V. was placed. He had an MRI done. Then entire time Jarrin was very mature and so cute. My little buddy handled this very well. The nurse let me be involved with his care as much as possible, I was grateful for that in that it gave me something to do. He used the bathroom and well he had an accident while in there. Again he was so mature, he didn't freak out. The nurse and I cleaned him up and put him in a dark blue adult gown. He looked like a Jedi. Jarrin liked this idea of looking like a Jedi. He just felt so sick and was happy to be clean and able to use the force ;) I'm going to bring an extra set of clothes to the urgent care/ER from now on. The results of the MRI concluded that Jarrin did not have appendicitis but that he had abnormal findings (I don't have a diagnosis yet). I took a second to think "really?" "seriously?". No way, it's not like we haven't spent the last 18months working on Jeff's intestines but now my baby, my little buddy?? I was relieved that he didn't have appendicitis that's all I could say to the DR. He must have thought I was a weirdo because again that's all I could say and I must have said it a couple of times because the DR. asked if I was ok. OK? I thought, should I not be ok?? Why this body part? Why anything at all for that matter? The next step is waiting for the referal to the peds G.I specialist. Looking back Jarrin has had abdominal pain off and on for at least 8wks. I thought it was anxiety, hunger nothing serious. It has progressively gotten worse. He now feels nauseated all day and vomits randomly. His bowel movements are completely normal. Before leaving the urgent care the nurse hands me a couple of bags with plastic containers and tells me that I need to get a stool sample from Jarrin and disperse it into these plastic containers (this is why I am not going to be a nurse!) ok I said. Staying positive and matter of fact with Jarrin, I just say no worries we can do this. Jarrin has yet to go...poor kid can you imagine a 9yr old almost 10 yr old having to let his mom catch his crap?? Ya, I feel for him but I really need his stuff!
I feel numb and heavy. After feeling so great last week this week sucks rocks! We weren't planning on telling anyone, but while talking to Grandma Price he poured his little heart and soul out sharing about his experience in the urgent care. When I got on the phone, Grandma in a stern but concerned voice said.."What's going on?" I just said we don't know and explained the situation. She is so good at telling others what needs to be done. She has told family members so keep Jarrin in their prayers and I feel so grateful for that. She reminded me that this is what I do, I take care of others. **tears, but why my precious little boy? I need him to be ok, I just need him to be ok. It would mean everything to me if you could keep my little man in your prayers. I am looking forward to telling you great news and how we graciously deal with this but right now I feel so helpless and human and I really hope Jarrin understands why I shared such a personal experience. The word Hope rings throughout my heart and soul. I have to keep Hope.
Monday, March 23, 2009
This is not that kind of blog
Posted by All for J's at 2:13 PM
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6 comments:
Jen,I didn't relize really what was going on with you and your family. I know I am far away but if you ever need vent or e-mail me ..Whatever please do!
Love, Brooke
Jennifer
Holy Moley! I cannot believe this. Please, please, please tell me what we can do to help. If you EVER need me to take Jaliece while you are taking Jarrin or Jeff to appts do NOT heistate to call. The time she and Austen played together was great and he really liked her. And Alli would just love a big girl to hang out with. I have a friend who just went through something similar with her 13 yr old and she LOVES her pediatric GI specialist. I will get his name from her. Please let us help you out. You need it and we want to help. call me 655-5774. Stay positive-you are in our prayers!
I will keep your family in my prayers. Always remember that Heavenly Father has a plan for you and something for you to gain through your trials. Let's hope your trial will be over SOON!
I wish I were close enough to help. If you need help while here, let me know. I just love you and you have always been such a huge example of faith to me. You are a tough lady... wish I could be more like that.
Anyway, love ya and I will do what I can. You need to ask for help and let others help bear your burdens. We would love to...
I also think its interesting you used the word HOPE. We have one word/month that we focus on for our devotionals each morning. This month is hope. Our scripture is 2 Ne 31:20...Wherefore, ye must press forward with a steadfastness in Christ, having a perfect brightness of hope, and a love of all men. Wherefore, if ye shall press forward, feasting upon the words of Christ, and endure to the end, behold, thus saith the Father: Ye shall have eternal life.
We have been breaking down that scripture each day and talking about a little bit at a time. It amazes me how powerful and "meaty" that scripture is. Keep up the hope. Hope brings so many more blessings.
You are one of the strongest women I know. One I hope to emulate. Your family is in our prayers. I hope that you will call me if there is ever a way I can help. Hang in there.
Tonight I feel light and my head is more clear. Wow, I am very blessed to have you as my friends. I am so grateful. Thank you so much for your kind and uplifting words, it's just what I needed. I will ask for help i promise ;) Good night and hopefully tomorrow will bring some happiness to us all
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